The Day After

Well, today has been a mixed bag. We don't know what to think at the moment. And it starts weighing pretty heavily.

First of all, from a cardiac standpoint, Silje is doing great. Her heart is pumping at a great rate, her blood oxygen level is way up there, her breathing is good. All the stuff that surgery was supposed to fix seems to be fixed. We were in a couple of times in the night and when we came in this morning, we found that one of the night nurses had made a bow out of gauze and put it in her hair, and put her monkey lovey in her bed with her. It was dreadfully cute



And the nurses were very positive saying that she was doing "stellar." So, that was wonderful to hear.

This afternoon, however, her right hand started moving rhythmically, and then her foot joined in. The nurse said it had done it once in the night, too, but by the time the doctor on the floor got there, it had stopped. Well, this time it stopped as well, but after a minute or so. Then, sometime later it did it again and the doctor had the nurse give her something to stop the seizure.

That worked for a couple of hours, in which time the doctor spoke with a neurologist who suggested a different medicine to try. The neurologist also called for an EEG.

So, in came another team of folks with their specialized equipment and began hooking up electrodes to her head.



She had still another seizure as they were finishing up the EEG, so maybe the neurologist can give us a good idea as to what is going on with her. The new medicine is supposed to make her a bit sleepy at first, and then those effects wear off and she shouldn't notice them after a few days. But, since it makes her sleepy to start with, they will wait a day to take her off the ventilator. While she was awake today, she was moving her mouth again like she wanted to nurse. So, hopefully we can get her to that point sooner rather than later.

And after they removed all those electrodes, she had one really amazing hairdo!



We take it hour by hour and work at taking it all in, but we start thinking that at some point our little girl, just six days old, could maybe have a little break from things and start enjoying life. She is a sweetheart.